Was just telling a friend that there was a positive side effect to dad’s ulcerative colitis episode — I got to spend some quality time with my sis. While growing up we never got to spend much time together. I went to school in Muscat and she went to a special school for children with disabilities in Goa.
She’s 75 per cent deaf in one ear and 50 per cent deaf in the other, and when she speaks it doesn’t sound anything like most of us (which is not such a big deal because most people I know sound odd either way). She uses a hearing aid to boost her hearing levels.
Post Class X, I moved to Goa for further studies, the primary reason being that I could now be closer to my sister. However, she lived in a boarding school and I lived in hostel, so we did not meet that often. We have always been close even though we are quite different from one another in both looks and temperament.
Like many people with a disability (or without one too), she can be very stubborn, and dealing with these stubborn spells can be a very exasperating experience. However, I’ve learnt a little trick on how to handle stubborness. If she says no, I just let it go. But she’s quite impressionable, so I sneakily try to impress her with a new idea so she will buy it
And impressions must be made – just until she steps outside of her shell. She fears the unknown immensely as wells as social situations, because she does not want to make communication mistakes in front of people. BTW a recent survey indicated that more people have a fear of social situations than spiders.
I know that sometimes she feels lonely and underconfident. But she MUST learn that it is okay to make mistakes, and these are the only stepping stones to independence and maybe, self-discovery.
One of the communication problems we faced during my dad’s hospital days was communicating with her when she was at school (she works as a volunteer at a school for mentally challenged kids) because she cannot use the telephone. But thank God for SMS. Now, she has her own a mobile phone and it’s given her a tremendous amount of confidence. Cousins and friends who would communicate with her only so far and no further, (I think they just did not know how) now text her regularly to find out what she is doing and vice versa.
I want her to live a full life, strive for more, be independent, be confident and understand that the world is her oyster, if only she wants it to be.
